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After Waiting for just over a Year for Heather to receive a bilateral lung transplant she received the call on June 26 2013. We have been waiting for so long we became somewhat complacent in what we were waiting for.
Heather is suffering from a disease called Constrictive Bronchiolitis. This is a rare disease that affects the smallest airways in the lungs and restricts the body’s ability to oxygenate the blood.
Well the Phillips family has had a rough couple of weeks. Right now Josh Corbin and Keira all have ear infections and have already been sick for a week, heather has been sick for 2 weeks with the flu. Heather also goes in for a right heart catheterization on Dec-28th. As of now the whole family is recovering and is continually grateful for all the prayers. The support has been amazing. Thank you so much!!! -Heather
C.T. scan shows that the disease is progressing and my 6 min walk test shows that I need 5 liters of oxygen. that is just to keep my o2 levels at 90 which is also worse then my last visit. I’m going to be going on yet another new medicine which puts me up to 5 different medicines that I am on right now. I am also going to see a throat specialist since my voice is starting to sound more and more like a chipmunk =-). I am so thankful for all the support. Thank you so much everyone for taking time to read my story. I may be in this unfortunate situation but I have never felt so blessed…….Heather Phillips