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After Waiting for just over a Year for Heather to receive a bilateral lung transplant she received the call on June 26 2013. We have been waiting for so long we became somewhat complacent in what we were waiting for.
Heather is suffering from a disease called Constrictive Bronchiolitis. This is a rare disease that affects the smallest airways in the lungs and restricts the body’s ability to oxygenate the blood.
C.T. scan shows that the disease is progressing and my 6 min walk test shows that I need 5 liters of oxygen. that is just to keep my o2 levels at 90 which is also worse then my last visit. I’m going to be going on yet another new medicine which puts me up to 5 different medicines that I am on right now. I am also going to see a throat specialist since my voice is starting to sound more and more like a chipmunk =-). I am so thankful for all the support. Thank you so much everyone for taking time to read my story. I may be in this unfortunate situation but I have never felt so blessed…….Heather Phillips
Heatherslungs.com has been up for a few days now. We have gotten a lot of positive words of encouragement. I would like to thank everyone for their support, it has lifted Heather’s spirit. It is really great to have such an awesome support system for Heather. With so many people there for her, she never feels that she is going though this alone. Tomorrow she will have her first doctors appointment since she has been put on the double lung transplant list. We are hopeful that her lung disease and hypertension is not getting worse. Tomorrow she will write a blog about it. Thank you everyone so much for your support and endearing words!