Heather is suffering from a disease called Constrictive Bronchiolitis. This is a rare disease that affects the smallest airways in the lungs and restricts the body’s ability to oxygenate the blood. As an analogy, imagine the lungs airways as the root structure of a large tree. They are large at the top and get smaller [...]
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Feb
21
On the list for 7 months.
I have officially been on the list for 7 months. The wait has been not so bad. Been sick a few times and breathing can be good and bad at times, but I’m finally feeling my medicine kick in so its making me feel like I can take care of my kids better =-). I am so thankful for all [...]
Aug
02
1st doctors visit since placed on the double lung transplant list.
C.T. scan shows that the disease is progressing and my 6 min walk test shows that I need 5 liters of oxygen. that is just to keep my o2 levels at 90 which is also worse then my last visit. I’m going to be going on yet another new medicine which puts me up to [...]
Jul
25
Post By Josh Phillips
Heatherslungs.com has been up for a few days now. We have gotten a lot of positive words of encouragement. I would like to thank everyone for their support, it has lifted Heather’s spirit. It is really great to have such an awesome support system for Heather. With so many people there for her, she never [...]
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